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Introduction: With global population ageing and the rising burden of Parkinson’s disease, standardized health information is essential for planning, monitoring, and improving care. This review examined the necessity, importance, and principal objectives of a Parkinson’s Minimum Data Set (PMDS) for health systems. Information sources or data: Scientific articles published between 2010 and 2025 were searched in PubMed, ScienceDirect, EBSCO, Google Scholar, SID, and IranMedex, together with reports and documents from international organizations related to Parkinson’s disease, including the International Parkinson and Movement Disorder Society and other relevant associations. Selection methods for study: A systematic literature review was conducted in 2025 using library and internet-based searches. More than 100 Persian and English records were screened; based on relevance to Parkinson’s MDS, availability of full text, and methodological quality, twenty articles and national PMDS documents were selected for detailed analysis. Combine content and results: Findings indicate that countries such as the United States, the United Kingdom, Germany, Canada, and Australia have developed PMDS frameworks to standardize collection of demographic, clinical, rehabilitation, and outcome data for people with Parkinson’s disease. These datasets enable continuous monitoring of disease progression, evaluation of treatment effectiveness, assessment of care quality, epidemiological surveillance, and national and international data comparison. The literature identified lack of standardized documentation as a major challenge in Parkinson’s care and emphasized PMDS as a critical mechanism for integrating structured data into electronic health records and supporting evidence‑based clinical and policy decision‑making. Conclusion: National PMDS improves data quality, sharing, decisions, and Parkinson’s patient outcomes.

     
Type of Study: Review | Subject: Special
Received: 2025/12/30 | Accepted: 2026/04/28

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